Caregiver Compassion: Helpful Tips you need to know

Written by Larea Mcqueen

Hi, I'm Larea, I am a Registered Nurse specializing in Dementia Care, with 30 years of experience supporting dementia patients and their families. Over the years, I have provided care in diverse settings, including homes, hospitals, nursing homes, assisted living facilities, and hospice. My passion is guiding caregivers, sharing my knowledge and experience to help them navigate the challenges of dementia care with confidence and compassion.

Finding Caregiver Compassion

Have you ever visited a nursing home during mealtime? You’ll notice many of the people there depend on their caregivers’ compassion because they have dementia and can no longer feed themselves. The level of help varies—a gentle reminder to take a bite is all some need, while others require every bite and sip to be fed to them.

Feeding someone with dementia can take a long time, sometimes an hour or more. But what happens when the person helping them doesn’t have much patience or compassion? Instead of taking the time, they rush, and that can cause all kinds of problems. The person with dementia might get upset and refuse to eat, or the caregiver could become frustrated and quit trying.

Both outcomes are harmful to the person with dementia, but compassion and patience can change the entire situation.

Caregiver Compassion

What Is Caregiver Compassion?

Compassion is all about recognizing the suffering of others and taking action to help. As a nurse, compassion is second nature for me—it’s at the core of who I am. Unfortunately, not everyone is naturally compassionate.

In caregiving, compassion is what separates someone who’s simply “doing a job” from someone who is truly making a difference. When caring for someone with dementia, compassion looks different than caring for someone with a physical illness. Dementia isn’t just about memory loss—it causes mental pain and confusion that’s often invisible.

For someone with dementia, compassion means remembering who they were before the disease took hold, and then thinking, “How can I make today better for them? What can I do to bring a little joy or comfort into their world?” Sometimes that means brushing their hair or putting on makeup if they always liked to look nice. Other times it’s as simple as sitting with them and holding their hand.

Compassion Leads to Patience

When you put yourself in their shoes, you naturally begin to feel more compassionate, and that compassion helps build patience. It’s important to recognize that the problems your loved one is facing are real and completely out of their control. They aren’t trying to upset you or make things difficult.

Ask yourself:

  • How would I want to be treated if I were in their situation?
  • Will my response make things better or worse for them?
  • How can I adapt to their needs rather than expect them to adapt to mine?

Developing Empathy and Compassion

Empathy is when you feel someone else’s pain, and compassion is when you act on it. Imagine what it would be like to have dementia. What if you kept forgetting everything, repeating yourself, or couldn’t control your body? How would you want people to respond to you? Are you responding to your loved one the way you would want someone to treat you?

Caregiver Compassion

Caregiver Patience: What Does It Look Like?

Patience is about staying calm and not getting upset, even when things are challenging or take longer than expected. This is especially important in dementia care, where things often slow down.

Take getting dressed, for example. Maybe it used to take two minutes for your loved one to get ready, but now it takes 30. It’s natural to want to hurry things up, but for someone with dementia, rushing only creates stress. Instead, we need to slow down and work with their rhythm.

Repeating questions is another common challenge. Someone with dementia might ask the same thing over and over because they genuinely don’t remember. Here’s how you can handle it:

  • Stay calm and smile.
  • Answer the question completely, the first time.
  • Reassure them with a gentle touch and comforting words.
  • Distract them with something they enjoy.
  • Try using a whiteboard with their schedule in plain view.

And here’s a tip—avoid telling them about events too far in advance. It’s likely to create unnecessary anxiety.

Caregiver Compassion

Benefits of Developing Patience

When you practice patience, everyone benefits. Your loved one feels safer and more at ease. You make better decisions. Plus, it helps your own well-being—mentally and physically.

In today’s society, we all are in a hurry, but it helps to remember someone with Dementia dances to the beat of a different drum. Unfortunately, you can’t change the beat of their drum. Trying to speed them up only leads to anxiety for them and frustration for you. But the good news is that you can change your drum’s beat!

    Caregiver Compassion

    How To Develop Patience and Compassion

    One simple but powerful technique is breathing. When you start feeling frustrated, pause, and take a few deep breaths. Breathe in slowly for five seconds, like you’re smelling flowers, then exhale slowly as if you’re blowing out candles. Do this a few times, and you’ll feel calmer and more in control.

    Humor also helps shift the mood. Laugh together, reminisce about funny memories, or just smile—it can lighten even the toughest moments.

    Another key is mindfulness—which is all about living in the moment. When caring for someone with dementia, you’ll quickly realize you can’t control the disease, but you can control how you respond to it. Slow down, focus on the present, and be fully engaged in what you’re doing.

    Changing Your Mindset

    Recognize that your loved one isn’t in control of their behavior, and neither are you. It’s dementia causing the challenges.

    Ask yourself:

    1. Am I reacting to the disease or the person?
    2. What response will be most helpful to my loved one?
    3. How would I want to be treated in their shoes?

    By learning to slow down and shift your mindset, you’ll find that developing patience becomes easier.

    Building a Routine

    A consistent routine can also help. People with dementia thrive on predictability. Routines reduce anxiety and make daily life more manageable for everyone. If you’re constantly feeling overwhelmed, re-evaluate your day. Can you let go of a couple of non-essential tasks? Can you ask someone to help with the housework or errands? Lightening your load will help you feel less rushed and more patient.

    Finding Support

    Don’t underestimate the value of a support group. Sometimes just knowing you aren’t alone can make a huge difference. You’ll meet other caregivers who understand what you’re going through and can offer tips on how patience has helped them. Learn more about caregiver support HERE.

    Caregiving for someone with dementia is tough, but you don’t have to do it alone.
    I offer an Understanding Dementia course that goes deeper into the topics of compassion and patience. When you truly understand dementia, it becomes easier to see how the disease affects your loved one. This knowledge helps you shift your perspective, allowing you to be more compassionate and patient, even when things get challenging.

    Through this course, you’ll not only learn about the different stages of dementia and the changes your loved one will go through but also how to keep them feeling safe and understood. Compassion and patience are skills that grow when you understand the struggles of those with dementia—their confusion, their fears, and their inability to control what’s happening to them.

    By deepening your understanding, you’ll find yourself naturally developing more patience. You’ll start to recognize that their behaviors aren’t personal, and this understanding allows you to respond in a calm, compassionate way.

    Together, we can create a better journey for both you and your loved one, with compassion and patience at the heart of every interaction.

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